SHARKYSTREASURES.COM

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This website is dedicated to my son Nikolas.

Welcome to Sharkys Treasures:

     My biggest treasure is my family,  My son is the angel of our lives, he is a very special child.  He was born with Tetralogy of Fallot. This is a complex congenital heart defect that  is present at birth.

     There are four heart defects that lead to a reduced blood flow to the Lungs and the mixing of oxygen-rich and oxygen-poor blood in the heart.  Together, these defects mean that the body does not receive enough oxygen-rich blood.  Thus, the child's skin, lips, fingernails and tongue often have a bluish tint (cyanosis or blue baby when occurring in infants).  This tint is especially noticeable after exertion ( for babies this is most often during feeding time). 

Our Son Nik has had surgery for his defect and has come out a Champion.  Nik has had hearing loss since the surgery and now has to wear hearing aides to help out.  He has a beautiful tone of voice yet very understandable with the new aides.  It has been over 5 years now and Nik has severe leakage in his heart.  We found out just recently that this must be corrected.  

     This is very difficult to say when he will undergo this surgery.  The doctors want Nik to hold out as long as his little heart will let him.  We are not sure as of yet all the procedures ahead but know that valve replacements until he is fully grown will allow him to live a full life.

 

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This site was last updated 01/13/2007